I call this ‘The Fall’ because there are no treatments to really help us.

I’m so tired of hurting everywhere. I’m so tired of explaining that the pain isn’t localized. It is everywhere.

When people ask me, how can the pain be everywhere? I don’t know to explain that it can hurt at my shoulder and it can hurt at my knee at the same time. It feels like a spiderweb, a series of dots, pieces of calcified fiber, and to move my arms and legs, I have to break them, I have to break through these dots, these little balls, and every time I do that, it hurts.

To repair itself, the body makes more of these dots, these calcified balls, and we go on this circle over and over. I keep breaking down these balls and I keep breaking through the pain, and then my body rebuilds it trying to do me a favor.

It’s difficult to find the strength each time to bounce back.

There are many different things on the market to help with fibromyalgia. Everything from Gyphenisine tablets for mucuous membrane to vicodan to kill pain. Sometimes it is just about getting through the day. There’s frustration and the disturbance that it is not going away. It is difficult to live knowing that. It is so debilitating and frustrating.

Having chronic pain is exhausting. Every so often, I’m going to pop up here and talk about it.

I get so sick and tired of feeling sick and tired. Sometimes I have to stop in the middle of the day and sleep for a few hours. When people say, “Donna, how do you do it? You’re amazing.” I don’t feel amazing. I keep going because I don’t think I have an option. There are a lot of people counting on me and that keeps me going.

For all those who have chronic illness, I get it. For all those who need to reschedule, I understand. For all those who need home visits because it is so hard to get out of the house, I understand. For those of you who would do better seeing me on Skype sessions or on web cam, I understand. If you need support in the bedroom or the living room or the dining room, I understand. If you need to be on a heating pad or an egg carton mattress, I understand. If your foot gets numb and you don’t want to have to explain to somebody that your foot went numb and you can’t get in the car, I understand. When you get burning sensations, I understand. I have those numbing times. I have those burning sensations. I get it.

It is important that we come together. If you’re unable to come to me, I can come to you.